Today is one of the tougher days of living with this disease and the chronic pain that comes with it. Walking a journey with a combination of auto immune diseases is always like balancing on a tight rope. You have to constantly be aware of your environment and the impact it is having on you. And the toughest part is on your worst pain days you HAVE to get up and keep moving. This let me tell you is the biggest challenge of all.
It’s easier to say I just don’t want to get up today. It’s easier to say the pain is beyond what I can handle and just give into it and allow it to consume you. It’s hard to push through it BUT if you don’t get up and move you surrender to joint inflammation and can make it worse long term.
Since January this year I have been struggling with a new addition to the many joint challenges I have. This one has been a constant searing pain in my right shoulder. As you can imagine adding this to an already challenging right arm that has Complex Regional Pain Syndrome and burns 24/7 has not been a fun experience.
This morning however after very little sleep over last 5 days, I got up and pushed myself to go to the gym. I pushed myself to just walk on the treadmill and do some key stretching and joint supporting exercises. I booked an appointment with my Chiropractor and got some treatment to help release the spasms and I made sure I did all I could to help myself. That’s all that really matters in the end. Taking the time to make sure you do the very best for yourself to make it easier to cope.
It took me a few years to learn to do this. To learn to listen and honor my body in the best possible way. I have had to learn the art of surrender in a way where it focuses on self awareness and love. I have had to teach myself that on the most challenging days it’s essential to just do that the best I can. It has also taught me to get up and move but once I have done that to also lie down and rest if that is what my body needs.
I think it’s important to talk about the tough days as so few people understand them. It’s important to be a voice for my fellow suffers and remind them it’s ok to have a shit day and be pissed off.
There are so many people in the world today struggling with this kind of pain and otherwise referred to as “invisible illnesses” that I feel it’s imperative to help people understand more. The stats on auto immune diseases globally are off the charts with over 52 Million people in the USA alone struggling with these diseases. There are between 80 and 100 different auto immune diseases and they all have complicated side events and challenges.
So today all I ask is be mindful of the people around you and how they may be struggling and if you have a friend with chronic illness or pain be gentle and understanding when they are grumpy or down. And always always adopt an attitude of gratitude